Sep 7, 2011
It took him a long time to sit up, I always thought it was simply because he didn't have the weight or girth to hold up his length and big head. Now that I know about the vestibular and proprioceptive senses, and what happens if they don't function quite as they should, I know that could be part of it too. I have an idea of why he might have been wailing for hours most days, one possible piece of the nursing difficulties, and why he would only sleep in a room all by himself, with blackout shades, and white noise.
Before my darling beast was even born he was overreacting to sensations. He routinely kicked the stethoscope off my belly when the doctor tried to listen to his heartbeat. Bob and I sat down for an opera, and he NEVER stopped moving. Not once. For the several hours we were there.
As much as I love the quote, "the plural of anecdote is not data," it's hard not to take Simon's early months and years as solid proof that sensory processing disorder is something you're born with, and something that shows up from the beginning. It could be that my son and the few people I've heard similar stories from are the minority, though I doubt it. I don't have a good resource for my own very early childhood, so I may never know how much of a sensory infant I was, but just as I see a little bit of Simon's possible future in my own adult sensory world, I think I can see a little of my sensory past in his young life.
I hope that the awareness efforts make headway into having SPD better recognized, funded, and researched, so we can all point to the data to show that our kids aren't coddled, undisciplined, or poorly raised, but they are truly born this way. That we can back up the data with our sad and funny anecdotes, instead of relying only on those. I love data for it's own sake, but with this, it's personal, it's my child's future access to resources, to tools and understanding.
For now though, I'll just let the plural of anecdote be anecdotes, and tell all the stories and share all the photos that help people understand his little sensory life.